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The Rare Disease California Caucus is the first project of CAL RARE and was launched in 2017 to promote awareness of rare disease issues. The bipartisan Caucus is led by Assemblymember Brian Maienschein (D-San Diego) and Assemblymember Marie Waldron (R-Escondido).


  • Bring public and legislative awareness
  • Ensure rare disease patients have a voice in shaping policy
  • Educate legislators and staff about rare disease policy issues
  • Opportunity for legislature to engage with rare disease community (patients, academia, hospitals, biopharmaceutical industry, government agencies)


Assemblymember Brian Maienschein's office: Jaqueline Anapolsky, jacqueline [dot], 916-319-2076



Assemblymember Brian Maienschein (Co-Chair, D-76)

Assemblymember Marie Waldron (Co-Chair, R-75)

Assemblymember Cecilia Aguiar-Curry (D-4)

Assemblymember Joaquin Arambula (D-31)

Assemblymember Rebecca Bauer-Kahan (D-16)

Assemblymember Diane Dixon (R-72)

Assemblymember Vince Fong (R-32)

Assemblymember Jesse Gabriel (D-46)

Assemblymember James Gallagher (R-3)

Assemblymember Mike Gipson (D-65) 

Assemblymember Jacqui Irwin (D-42)

Assemblymember Tom Lackey (R-34)

Assemblymember Evan Low (D-26)

Assemblymember Devon Mathis (R-33)

Assemblymember Liz Ortega (D-20)

Assemblymember Jim Patterson (R-8)

Assemblymember Diane Papan (D-21)

Assemblymember Cottie Petrie-Norris (D-73)

Assemblymember Buffy Wicks (D-15)

Assemblymember Rick Chavez Zbur (D-51)

Senator Ben Allen (D-24)

Senator Brian Dahle (R-1)

Senator Susan Eggman (D-5)

Senator Steven Glazer (D-7)

Senator Monique Limon (D-19) 

Senator Nancy Skinner (D-9)

Senator Scott Wiener (D-11)


California Action Link for Rare Diseases Inc. (CAL RARE), 1811 Santa Rita Road, Suite 224, Pleasanton, CA 94566

CAL RARE is a registered 501(c)(3) non-profit organization #81-5461840
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