CAL RARE is dedicated to improving the lives of rare disease patients in California. We are a coalition of rare disease stakeholders with a goal to raise awareness among the general public and decision makers regarding rare diseases. We want to bring recognition to the issues rare disease patients face and work to ensure access to physicians, treatments, and social services.
News
Tuesday, April 8, 2025 5:04 PM
4/24/25 Webinar: Understanding Your Disability Insurance Options
Monday, March 17, 2025 12:12 PM
3/27 Webinar: What To Know About Taking Time Off Work
Friday, January 10, 2025 12:13 PM
1/30 Webinar: Medicare: What's New in 2025
Monday, July 1, 2024 9:12 AM
7/16 Webinar: Understanding Your Rights at Work
Thursday, April 27, 2023 2:34 PM
Rare Disease California Caucus Briefing 5/3/2023
Please join us for a Rare Disease California Caucus briefing on Access to Care: Telehealth After Covid. State Capitol Room 127. This briefing is open to the public and accessible. A complimentary lunch will follow in Room 125.
AGENDA
